Enacts the "pediatric palliative care act" to establish pediatric palliative care centers to provide palliative care to individuals who are under twenty-one years of age, have been diagnosed with a chronic, complex, life-threatening illness that is expected to shorten their life expectancy, and is not expected to survive past twenty-one years of age.
Impact
One significant impact of S09323 is its potential to enhance the quality of life for children facing severe health challenges, allowing them to receive specialized care in dedicated facilities that are exempt from certain regulatory requirements. By establishing these centers, the bill seeks to improve access to critical palliative care services, which can offer support not only to the patients but also to their families during challenging circumstances. Additionally, the bill proposes an enhanced rate methodology for these facilities, aiming to ensure that adequate funding and resources are available for their effective operation.
Summary
Bill S09323, also known as the Pediatric Palliative Care Act, aims to establish a new category of residential care facilities specifically designed to cater to pediatric patients needing palliative care. Under this bill, pediatric palliative care patients are defined as individuals under the age of 21 who have been diagnosed with a chronic, complex, life-threatening illness where survival past twenty-one years of age is not expected. This legislation seeks to create designated pediatric palliative care centers that will provide respite care and hospice services, as defined by existing health regulations.
Contention
The proposal has generated discussions regarding funding and regulatory oversight for pediatric palliative care centers. Critics might raise concerns about the sufficiency of funding sources identified in the bill, which includes various state and federal assistance programs. Furthermore, the establishment of specific categories of care could lead to debates over the adequacy of care and support for children outside this classification or those requiring a different type of care. Overall, while the bill aims to provide tailored care for a vulnerable population, it also brings to light critical issues regarding healthcare equity and accessibility.
Same As
Enacts the "pediatric palliative care act" to establish pediatric palliative care centers to provide palliative care to individuals who are under twenty-one years of age, have been diagnosed with a chronic, complex, life-threatening illness that is expected to shorten their life expectancy, and is not expected to survive past twenty-one years of age.
Enacts the "pediatric palliative care act" to establish pediatric palliative care centers to provide palliative care to individuals who are under twenty-one years of age, have been diagnosed with a chronic, complex, life-threatening illness that is expected to shorten their life expectancy, and is not expected to survive past twenty-one years of age.
Establishes the hospice and palliative care workgroup to study and issue recommendations related to the state of affairs of hospice and palliative care services offered in New York state, utilization metrics of hospice and palliative care services, and effectiveness and accessibility of home hospice and palliative care services; provides for the repeal of such provisions upon expiration thereof.
A bill for an act relating to pediatric palliative care centers, and including effective date provisions. (Formerly HSB 267.) Effective date: 05/27/2025.
Establishes the office of hospice and palliative care access and quality to provide expertise and input on hospice and palliative care policy development and regulation.
Amends policies and procedures to improve access to palliative care and hospice services; directs implementation of hospice-palliative care health system demonstration projects.
Amends policies and procedures to improve access to palliative care and hospice services; directs implementation of hospice-palliative care health system demonstration projects.