Enacts the "pediatric palliative care act" to establish pediatric palliative care centers to provide palliative care to individuals who are under twenty-one years of age, have been diagnosed with a chronic, complex, life-threatening illness that is expected to shorten their life expectancy, and is not expected to survive past twenty-one years of age.
Impact
The implementation of A10569 would amend the public health law by creating a distinct classification for pediatric palliative care centers within the category of residential care facilities. Such a change would allow these centers to operate under specific guidelines that prioritize the needs of children with serious health conditions. Facilities established under this act could be eligible for various types of funding, including resources from federal and state programs aimed at supporting care for children with medical fragility, thereby potentially increasing access to essential health services for this vulnerable population.
Summary
Bill A10569, known as the 'Pediatric Palliative Care Act,' aims to establish specialized centers providing palliative care services to children under 21 years of age who are diagnosed with complex and life-threatening illnesses. These facilities are designed to offer respite care and hospice services specifically tailored to support pediatric palliative care patients, ensuring they receive the necessary care in a compassionate environment. This bill reflects a significant step towards enhancing the quality of life for young patients and their families during difficult times.
Contention
While the bill seeks to improve care options for pediatric patients, there may be points of contention regarding the funding mechanisms and the potential regulatory burden on existing healthcare providers. Critics might express concerns about the adequacy of funding for these new centers, as well as the implications for existing residential care facilities that may need to adapt to new regulations. Supporters, on the other hand, argue that establishing such specialized care facilities is essential for meeting the unique needs of pediatric patients and their families.
Same As
Enacts the "pediatric palliative care act" to establish pediatric palliative care centers to provide palliative care to individuals who are under twenty-one years of age, have been diagnosed with a chronic, complex, life-threatening illness that is expected to shorten their life expectancy, and is not expected to survive past twenty-one years of age.
Enacts the "pediatric palliative care act" to establish pediatric palliative care centers to provide palliative care to individuals who are under twenty-one years of age, have been diagnosed with a chronic, complex, life-threatening illness that is expected to shorten their life expectancy, and is not expected to survive past twenty-one years of age.
Establishes the hospice and palliative care workgroup to study and issue recommendations related to the state of affairs of hospice and palliative care services offered in New York state, utilization metrics of hospice and palliative care services, and effectiveness and accessibility of home hospice and palliative care services; provides for the repeal of such provisions upon expiration thereof.
A bill for an act relating to pediatric palliative care centers, and including effective date provisions. (Formerly HSB 267.) Effective date: 05/27/2025.
Establishes the office of hospice and palliative care access and quality to provide expertise and input on hospice and palliative care policy development and regulation.